Disease control and quality of life of patients assigned to the ‹‹Asthmatic Child Care Program›› of a Primary Care Center
Main Article Content
Abstract
Objectives: To evaluate the clinical characteristics, the degree of disease control, and quality of life of patients and patients’ caregivers assigned to the "Asthmatic Child Care Program" in a primary healthcare center. Methods: A descriptive observational study, with prospective collection of data from three standardized questionnaires, delivered to the patient or caregivers: Asthma Control Questionnaire (ACQ)TM, Pediatric Asthma Quality of Life Questionnaire (PAQLQ)TM and Pediatric Asthma Caregivers Quality of Life Questionnaire (PACQLQ)TM, and retrospective collection of data from the patient's medical history. The sample comes from the population included in the "Asthmatic Child Care Program" of a primary healthcare center. Results: 40% of the patients had a maternal or paternal history of asthma, and 80% had a personal history of atopic dermatitis, allergic rhinitis, or food allergy. Average ACQTM result in 0.87 +/- 1.06 points (range 0 – 3.6). Average PAQLQTM results in: 6.08 +/- 0.77 (range 5 – 7). PACQLQTM mean of 5.48 +/- 1.06 (range 3 – 7). In patients with ACQTM < 0.5 points, the mean PACQLQTM score was: 6.30 +/- 0.83. In patients with ACQTM > 1 it was: 4.66 +/- 0.72. Conclusions: The presence of personal atopy and a family history of asthma is the risk factor most related to asthma development in our study. The degree of asthma control in the sample can be improved, with poorer disease control being related to a lower score on the quality-of-life scale, making it necessary to implement improvement measures in the educational, clinical, and healthcare settings.
Downloads
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Creative Commons
License Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0)
You are free to:
Share - copy and redistribute the material in any medium or format.
Adapt - remix, transform, and build upon the material The licensor cannot revoke these freedoms as long as you follow the license terms.
• Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
• NonCommercial — You may not use the material for commercial purposes.
• ShareAlike — If you remix, transform, or build upon the material, you must distribute your contributions under the same license as the original.
• No additional restrictions — You may not apply legal terms or technological measures that legally restrict others from doing anything the license permits.
References
Guía Española para el Manejo del Asma. (GEMA 5.0, 2020). Disponible en: www.gemasma.com.
Global Initiative for Asthma. Global Strategy for Asthma Management and Prevention. NHLBI/WHO Workshop Report. 2006. Disponible en: www.ginasthma.org.
Global Initiative for Asthma (GINA). Global Strategy for Asthma Management and Prevention, 2019. Disponible en: www.ginasthma.org.
Respirar-To Breathe. Asociación Española de Pediatría de Atención Primaria. c2018. España. Disponible en: www.respirar.org.
Juniper EF. How important is quality of life in pediatric asthma? Pediatr Pulmonol
Suppl. 1997 Sep;15:17-21.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring
quality of life in the parents of children with asthma. Qual Life Res. 1996 Feb;5(1):27-34.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Qual Life Res 1996; 5: 27 -34.
Sawicki G, Haver K. Asthma in children younger than 12 years: Initiating therapy and monitoring control. En: A Wood R, Redding G, TePas E, ed. UpToDate, 2019.
Juniper EF, Bousquet J, Abetz L, Bateman ED; GOAL Committee. Identifying ‘well-controlled’ and ‘not well-controlled’ asthma using the Asthma Control Questionnaire. Respir Med. 2006; 100: 616-21.
Juniper EF, Gruffydd-Jones K, Ward S, Svensson K. Asthma Questionnaire in children: validation, measurement properties, interpretation. Eur Respir 2010; 36: 1410-
Castro-Rodríguez JA, Holberg CJ, Wright AL, Martinez FD. A clinical index to define risk of asthma in young children with recurrent wheezing. Am J Respir Crit Care. Med. 2000; 162: 1403-6.
Informe Códigos OMIAP- Asma Infantil. R96 en menores de 15 años. Informe de Prevalencia 2012. Gobierno de Aragón. Dirección General de Salud Pública. Dirección General de Planificación y Aseguramiento.
Litonjua AA, Weiss ST. Risk factors for asthma. En: Barnes PJ, Wood RA, Hollingsworth H, ed. UpToDate, 2019.
Sawicki G, Haver K. Asthma in children younger than 12 years: Initial evaluation and diagnosis. En: Wood RA, Redding G, TePas E, ed. UpToDate, 2019.
Dold S, Wjst M, von Mutius E, et al. Genetic risk for asthma, allergic rhinitis, and atopic dermatitis. Arch Dis Child 1992; 67:1018.
Jia CE, Zhang HP, Lv Y, Liang R, Jiang YQ, Powell H, et al. The Asthma Control Test and Asthma Control Questionnaire for assessing asthma control: Systematic review and meta-analysis. J Allergy Clin Immunol. 2013; 131: 695-703.
Everhart R, Fiese B. Asthma severity and child quality of life in pediatric asthma: A systemic review. Patient Education and Counseling, 2009; 75, 162–168.
Horner S, Brown S, Walker, VW. Is rural school-aged children’s quality of life affected by their responses to asthma? Journal of Pediatric Nursing, 2012; 27, 491–499.
Cano-Garcinuño A, Mora-Gandarillas I, Bercedo-Sanz A, Callén-Blecua MT, Castillo-Laita JA, Casares-Alonso I, Praena-Crespo M. Looking beyond patients: Can parents’ quality of life predict asthma control in children? Pediatric Pulmonolog, 2015; 51, 670–677.
Cerdan NS, Alpert PT, Moonie S, Cyrkiel D, Rue S. Asthma severity in children and the quality of life of their parents. Applied Nursing Research, 2012; 25, 131–137.
Halterman JS, Yoos HL, Conn KM, Callahan PM, Montes G, Neely TL, Szilagyi PG. The impact of childhood asthma on parental quality of life. Journal of Asthma, 2014; 41, 645–653.